5 Things people with anxiety want you to know
I can’t write about the past and tell my story completely
without including the present. Actions,
after all, have consequences. It’s a long
story to tell but you may be wondering, it’s been two years, are you well? I wish there were a simple answer to that
question besides the old, “right as rain.”
Psoriatic arthritis and psoriasis never seem to go in
remission for me without biologic or anti-TNF medications. I’m currently on Remicade every six weeks and
methotrexate. Despite having had my
entire large intestine and rectum removed, I continue to have complications
from IBD. At least a few times a month,
I get dehydrated. If I showed up in the
ER every time I needed fluids they would have to reserve me a room.
Pain and anxiety have become my constant companions. I carry them everywhere. A recent day illustrates life for me very
well. My son and I both need eye exams
desperately. It had been put off due to
my health and hospitalizations. Our eye
doctor takes both walk-ins and appointments and since I have some good and bad
days we decided to pop over on a good day as walk-ins.
When we got to the clinic we discovered it happened to be a
very busy day. If we waited as walk-ins
it could take a couple hours. The
waiting room is filled with hard, straight plastic chairs. I knew this would never work for me; I’d be
in too much pain by the time I got to the exam to think clearly. However, they had two appointments open three
hours from now if we wanted to book those and come back. That was perfect. We took care of the paperwork and left.
A block over is a movie theater with thick, cushioned
reclining seats. It was the middle of
the afternoon on a school day so there was no crowd. I could treat my son and be comfortable. This is something we haven’t been able to do
for a while because of my pain. We
picked seats where I could not only recline but put my feet up. Even though I went to the restroom right
before the movie started, I still wasn’t sure I would make it to the
ending. I had to run as the credits
rolled. Still, we both greatly enjoyed
the movie and the seating enabled me to watch without pain.
We grabbed a bite to eat, unfortunately, not on such comfy
seats and headed back for the eye exams.
We sat in the dreaded hard, straight plastic chairs to wait our
turn. Should be any minute now, we have
appointments. Thirty minutes and I’m
getting nervous and get a drink of water.
Forty and my heart is beating faster, I’m standing up. Forty-five minutes and my face is strained,
I’m hurting, my chest is tight, heart racing and the doctor has just taken in a
family of four for exams. An hour and
I’m at my pain limit. I cannot sit/stand
in the waiting room any longer. Worse,
no matter how hard I try, I can’t keep the anxiety out of my voice when I tell
reception to take our names off the list.
A tear streams down my face. Not
because they can’t get us in timely, but because I can’t sit normally and wait
and the pain and anxiety is doing me in.
Reception apologizes profusely.
They told me to come back later to avoid this kind of wait. There is nothing to be done now but go home.
A week later we had appointments in a new office, no wait,
and were even able to order glasses and contacts the same day. It went well. I thought I’d treat my son to some lunch and
pick up a few groceries since he is so good to drive me around, saving me some
pain. As we got up to leave, I felt this
uncomfortable wet sensation on my belly.
It was very cold out so I was wearing leggings, jeans, a cami, thin long
sleeve shirt and sweater. I lifted the
sweater to see everything underneath being soaked through from a leaking ostomy
bag.
The world shifted and I was suddenly both nauseated and
exhausted from anxiety. I haven’t had a
leak like this, especially in public in a long time. Today, my guts decided pour. I haven’t eaten a bite of food! I should have known better than to put on
those leggings, they rode too high on the ostomy bag, not short enough and not
tall enough. Home, I have to get home.
We speed through a drive through so son can pick up some
lunch. Then he gets me home so I can
strip my clothes, get washed, changed and into something soft and hideaway
under the covers the rest of the day. A leak has never bothered me like this
before. It happens. Today I couldn’t stop the effects of the
anxiety on my body.
Do you share my struggle with anxiety? How do you handle it? Sharing this post will be a big step for
me. Two years ago, something like this would
have not have entered my mind. Now, I’m
not trying to figure out how to handle the bag, or a leak, I know how and could
do that eyes closed. The anxiety is strangling me.
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Tuesday, April 19, 2016
The present - Pain and Panic
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Yeah now you have to ensure effective Ostomay care
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